June 19, 2013 Meeting

MCRA partners met with partners from the Minnesota Healthcare Access Network to discuss their role in clinical research and educating  patients.

MCRA partners met with partners from the Minnesota Healthcare Access Network to discuss their role in clinical research and educating patients.

On Wednesday, June 19, members of the Minnesota Clinical Research Alliance (MCRA), met with partners of the Minnesota Healthcare Access Network to discuss their work in clinical research and begin building new relationships within the patient community group.

The Minnesota Healthcare Access Network (MHAN) has been in existence for more than 10 years and frequently brings together representatives from patient groups to discuss healthcare access issues, meet with legislators, network and share best practices. Previously, both member of MCRA and MHAN have suggested it would be mutually beneficial to introduce the two groups.

MCRA partners began by providing an overview of clinical research and their areas of expertise. Partners talked about recruitment, regulations, informed consent, compensation, patient safety and quality and access to care. They also talked about why they participate in MCRA – to help educate the public about the arability and opportunities presented by clinical research.

While several of the MHAN partners actively engage and inform patients about clinical trials (Alzheimer’s and JDRF – their entire focus is research), other groups were less aware. Justin Bell of the American Heart Association asked about Adverse Side Effects and specifically mentioned the stroke risk associated with the birth control pill Yaz. Dr. Berman and others discussed the control groups used for trials and while they do monitor for ASE is trials, until the medicine is used widely in populations with varying conditions it is difficult to predict all possible complications. If complications are detected in wider populations, every effort is made to notify the public and review of those studies and additional new studies are conducted.

Frederickson concluded the meeting by inviting attendees to network again on July 31st for a Social Media Training. More details will be shared shortly but the meeting will be held from 11:30 – 1pm at 333 S. 7th Street – Skyway Conference Center.

Attendees
• Molly Hair, Prism Research
• Aimee Gonzalez, MNCOME
• Mary Anne Elder, Clinical Research Institute
• Dr. Gary Berman, Clinical Research Institute
• Sarah Moeller, The Greenlight Group
• Zoe Levin, initio3i
• Jan Mueller, Alzheimer’s Association
• Jacquie Punch, Arthritis Foundation
• Justin Bell, American Heart Association
• Debbie Evans, JDRF – Juvenile Diabetes Research Foundation
• Patsy Bartley, NIP – Neighborhood Involvement Program
• Heidi Frederickson, MCRA
• Nate Prouty, MHAN

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